Expensive medicine payments should be scrapped, says health advisor

The health insurance council CVZ on Sunday told the health minister it wants to stop payments for three expensive medicines used in the treatment of metabolic disorders, the Nos reports.


The pills are used by patients suffering from the rare Pompe disease and Fabry disease, both of which cause the body to make insufficient amounts of enzymes.
The annual treatment for one patient is between €200,000 and €700,000.
The CVZ says although the pills do have an affect, their cost is too high in comparison with the results they deliver.
Reaction
In a reaction on Monday, Socialist party MP Renske Leijten told the Nos: ‘You cannot refuse patients necessary medicine because it is too expensive.’
Leijten wants an investigation into the cost of producing the pills to see if the manufacturers should lower the price. ‘It is not clear why they are so expensive,’ she told the Nos.
Pia Dijkstra, MP for the liberal left D66, wants each patient to be examined to see if the medicine is helping control their illness. If so, payment of the cost must continue.
‘Of course, the CVZ is there to advise the government on these matters, but we must not forget this is about people,’ she said.
Other parties have not yet commented, says the Nos.
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